Financial toxicity adds to stress of breast cancer diagnosis

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Summary

  • The average woman diagnosed with breast cancer may lose 50% of her productive paid work time
  • Rising rates of breast cancer among working-age Australian women have prompted urgent calls for action
  • Author and journalist Annabel Crabb will moderate a free online Q&A, The Financial Impact of Breast Cancer on Wednesday 18 March from 5-6:30pm (AEST)

In Australia, breast cancer incurs the highest healthcare expenditure of any tumour type, with over AU$1.5 billion spent on breast cancer screening and treatment in 2020–21.

Rising rates of breast cancer among working-age Australian women have prompted urgent calls for action to address the growing impact of financial toxicity.

Financial toxicity describes the negative impact of out-of-pocket costs, indirect costs and the changing financial circumstances of an individual and their household due to cancer, affecting decisions which can lead to suboptimal treatment outcomes.

The economic impact of breast cancer in Australia is vast, research by Monash University shows, and the impact of breast cancer on women’s productivity is profound, said report co-author Zanfina Ademi, Professor of Health Economics at Monash University.

“Despite the five-year breast cancer survival rate in Australia being over 90%, the average woman may lose approximately 50% of her productive paid work time due to absenteeism and presenteeism due to their cancer.

“This has major implications not only for women’s capacity to earn income following diagnosis, but also for broader economic costs to society.”

Out-of-pocket costs can range from a few hundred to tens of thousands of dollars, and can financially cripple cancer patients and their families, especially when one or more people are unable to work within the household.

More than 50% of patients also report a reduction in their household income after diagnosis of cancer, and one in three patients reported ceasing work or retiring due to the diagnosis and/or treatment.


A panel of experts will discuss in a free online Q&A, The Financial Impact of Breast Cancer on Wednesday 18 March from 5-6:30pm (AEST) moderated by author and journalist, Annabel Crabb. The Breast Cancer Trials event will offer important insights and real-world discussion about the financial realities faced by people diagnosed with breast cancer, drawing on the latest in research and real-life experiences.

The financial impacts associated with the most diagnosed cancer in women are both short and long-term, said Karen Price, CEO of Breast Cancer Trials and a member of the NSW Government Women’s Advisory Council.

“We know we have a gender pay gap, and women’s superannuation balances are lower than that for men. The nature of breast cancer treatment in the short term, the impact on the ability to work, and health issues arising from side effects which can persist over a long time, all create health care expenses and loss of earnings for women, some of whom are in the peak of their careers. This exacerbates women’s financial inequality and independence – an issue that can literally alter the course of a woman’s life.”

Alarmingly, nearly a quarter of people with a chronic condition, including cancer, report not receiving recommended care due to the associated costs.

“Improving our understanding of how individual patients and their doctors think, communicate and decide about expensive treatments could help minimise financial harms that are unexpected or unnecessary,” said Dr Deme Karikios, medical oncologist at Nepean Hospital and member of the Clinical Oncology Society of Australia (COSA) Financial Toxicity Working Group.

The Monash University study found that around 10,700 working-age Australians (mostly women) were diagnosed in 2022 with the cohort expected to lose a collective 16,400 productivity-adjusted life years (PALYs) over the following decade. That loss corresponds to roughly AU$1.4 billion in wage earnings and AU$3.26 billion in GDP over ten years, a sobering illustration that the cost of cancer extends far beyond hospital bills.

Participants can register for the Q&A here.

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